Legal and ethical considerations: step 1b in building a health web observatory

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Abstract:

This paper explores the impact of health information technologies, including the Web, on society and advocates for the development of a Health Web Observatory (HWO) to collect, store and analyze new sources of health information. The paper begins with a high-level literature review from across domains to demonstrate the need for a multi-disciplinary pursuit when building web observatories. For as researchers in the social sciences and legal domains have highlighted, data carries assumptions of power, identity, governance, etc., which should not be overlooked. The paper then recommends example legal and ethical questions to consider when building any health web observatory. The goal is to insert social and regulatory concerns much earlier into the WO methodology.

History

DateCreated ByLink
May 30, 2014
19:40:48
Kristine GloriaDownload

Related Projects:

TW LogoTWC Web Observatory (WebObservatory)
Principal Investigator: Deborah L. McGuinness
Co Investigator: Jim Hendler
Description: The Web Science Research Center at TWC RPI is working with other members of the Web Science Trust to create a global "Web Observatory". The global movement toward Open Data and transparency have successfully motivated the release of very large institutional and commercial data sets describing social phenomena, economic indicators and geographic trends. This proliferation of data represents great opportunity for researchers and industry but this data abundance also threatens to make it ever more difficult to locate, analyse, compare and interpret useful information in a consistent and reliable way; a situation which can only get worse unless we can help stakeholders perform useful analysis rather than drowning in a sea of data. A global Web Observatory will offer an institutional framework to promote the use of W3C and other standards in the development of Semantic Catalogues to globally locate existing data sets, Collection Systems to gather new global data sets, and Analytics Tools and methodologies to analyse these data sets.
Web Science Research Center (WSRC)
Principal Investigator: Deborah L. McGuinness
Co Investigator: John S. Erickson
Description: Web Science is the study of the World Wide Web and its impact on both society and technology, positioning the Web as an object of scientific study unto itself. Web Science recognizes the Web as a transformational, disruptive technology; its practitioners study the Web, its components, facets and characteristics. Ultimately, Web Science is about understanding the Web and anticipating how it might evolve in the future.

Related Research Areas:

Web Science
Lead Professor: Jim Hendler, Deborah L. McGuinness
Description: Web Science is the study of the World Wide Web and its impact on both society and technology, positioning the Web as an object of scientific study unto itself. Web Science recognizes the Web as a transformational, disruptive technology; its practitioners study the Web, its components, facets and characteristics. Ultimately, Web Science is about understanding the Web and anticipating how it might evolve in the future.
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